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Empowering young adults and their families within rare disease communities
Profile
Join date: Apr 18, 2023
Posts (2)
Feb 29, 2024 ∙ 4 min
Living RARE: Jessie Birnbaum
Jessie describes finding comfort and exercise in playing volleyball, and how symptoms of multiple rare conditions started to overtake her...
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Apr 28, 2023 ∙ 4 min
Catastrophe and Confusion: My Journey as a Medical Mystery
Jessie describes her experience with the healthcare system as a patient who went from a misdiagnosed illness to searching for a correct diag
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