Turning the tide for RARE youth...
Quality news,
for young people, by
young people
The RARE Youth Revolution is a dedicated news platform for young people to access relevant content centred around rare diseases.
Approximately 400 million people worldwide live with a rare disease, almost 50% of these are children and young people, and many more may be a young carer, supporting a loved one.
This platform is powering up young RARE voices to be heard and empowering a future generation of rare disease advocates.
OUR YOUTH TEAM
YOUTH EDITOR
Daisy Marriott
Communications Assistant,
RARE Revolution Magazine
Cholesteatoma
dmarriott@rarecommunication.com
YOUTH AMBASSADOR
Georgia Hart
Young adult (teens+) volunteer
Friedreich’s Ataxia
YOUTH AMBASSADOR
Eddison Miller
kids (under 12s) volunteer
Xeroderma pigmentosum
Our Revolution...
Jazz
RARE Revolution is a family that will never leave you behind. The experiences and memories I have I will never forget.
Favour and Precious
We want the RARE Youth Revolution to be a place where we can come together, have fun, make friends and be heard
Elena-May
Children and young people living with rare disease really value seeing others speaking out about their conditions, it makes them feel like they’re part of a community of people and that they’re valued and not alone