Zintle shares how the love and support of her family and friends has helped her to navigate life with a rare disease, and how important it has been for her to find ‘community’

Trapped inside his own body for many of his teenage years, Liam shares his personal story, which, despite the numerous battles he has faced at such a young age, is one of hope

Charley Reuben discusses how she addressed these feelings, reframed her mindset and removed blame to focus on the joy in her life. Shaped by the experiences of living with a rare condition, she has advice for other young people navigating a rare journey