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100 days, 100 faces, 100 stories
Passionate about rare disease advocacy, Liam McCarthy discusses the ways he is showing up for his community and striving to effect positive change. His work represents the power of young voices and shows that advocacy, in any form, has the power to truly connect and make a difference My name is Liam McCarthy. I am a 21-year-old who is finishing up my last semester of college, and I was born with a rare disease called classic congenital adrenal hyperplasia. This means I do not
Liam McCarthy
Apr 8


More than I ever imagined
Having experienced discrimination in the workplace, Niveda Kiridaran discusses how reaching out to, and becoming involved in, supportive organisations has helped her reframe her identity and guide and strengthen her path to advocacy
Niveda Kiridaran
Mar 18


My experience with spinal muscular atrophy: Orestes and friends
Orestis and his friends share his experiences with spinal muscular atrophy and the support he recieves from his friends
RAREYouth
Feb 18
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