RARE Youth Resources

Capturing RARE Youth Voices Survey resources

Here you will be able to find resources pertaining to the research studies conducted by RARE Youth Revolution in partnership with TREND Community.

Capturing RARE youth voices mental health survey PDF

The full PDF file with results from the mental health survey.

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Which social media platforms do you use most to LEARN and converse about your condition?

The information for this question for all 4 ages groups.

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Which social media platforms do you use to INTERACT with others living with rare disease?

The information for this question for all 4 ages groups.

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Capturing RARE Youth Voices results in full

The full pdf file with the results from the Capturing RARE Youth Voices survey.

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