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Powering up the voices of the youth rare disease community
RARE Youth Resources
Capturing RARE Youth Voices Survey resources


Here you will be able to find resources pertaining to the research studies conducted by RARE Youth Revolution in partnership with TREND Community.
Capturing RARE youth voices mental health survey PDF
The full PDF file with results from the mental health survey.
Click the image to view, download and print
Which social media platforms do you use most to LEARN and converse about your condition?
The information for this question for all 4 ages groups.
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Which social media platforms do you use to INTERACT with others living with rare disease?
The information for this question for all 4 ages groups.
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Capturing RARE Youth Voices results in full
The full pdf file with the results from the Capturing RARE Youth Voices survey.
Click the image to view, download and print