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Aerial View of Curved Road

Learning from others to help guide the way ahead in the twists and turns of growing up with rare disease

Learning from those who have tread the path before you can be really valuable in navigating your own journey and can help you face the challenges with confidence.


Our Letters to my Younger Self series is a reflective look back from some older members of our RARE community, as they consider the things they wish they knew or would have helped them as a young person living with rare disease, and which they wanted to share with us to help us thrive!

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