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Empowering young adults and their families within rare disease communities
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Join date: Feb 26, 2020
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Mar 21, 2024 ∙ 2 min
Rare disease and me: opinions from our youth community
For Rare Disease Day 2024, RARE Youth Revolution asked its followers to answer questions focused on life with a rare disease.
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May 19, 2022 ∙ 6 min
The pressing need for a specialist national intestinal failure centre for adults in Ireland
Sorcha Mc Elchar describes the challenges around care for adults with intestinal failure in Ireland, drawing on the first-hand...
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May 10, 2022 ∙ 4 min
How my university work-experience led to a full-time job at RARE Revolution!
By Charlotte Cooper Finding work-experience I was at university studying for my one-year Master of Arts in Publishing in the middle of...
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