Here, RARE Revolution Magazine’s Joe interviews young advocate Julio, founder of new support network Hope Beyond Diagnosis, about being a RARE sibling and why he decided it was the right time to help other families in similar situations.

Orestis and his friends share his experiences with spinal muscular atrophy and the support he recieves from his friends

Zintle shares how the love and support of her family and friends has helped her to navigate life with a rare disease, and how important it has been for her to find ‘community’