Get involved with our Rare Disease Day campaign…RARE Youth Revolution needs you! 

 

We want to ignite conversation around the mental health of young people who live with rare diseases and conditions and their caregivers for Rare Disease Day on 28 February 2025:

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1. Download one of the PDFs linked below and print it on A4 paper (21.0 x 29.7cm).

2. Write a word or sentence in the blank space that best describes your feelings and emotions about your rare disease/s or condition/s. Please only write in black pen or directly on the PDF document before you print.

3. Take a photo of yourself holding the sheet of paper, ensuring that your environment is well-lit with as much natural light as possible.

4. Write a short paragraph about yourself and why you chose your word/phrase.

5. Send your image, with your name, paragraph and social media handles to hello@rareyouthrevolution.com. Use the subject line ‘Rare Disease Day’.

 

The deadline is Monday 24 February. You must be 30 years old or under to participate. Your photo and the information you provide will be shared on RARE Youth Revolution social media on Rare Disease Day. Please wait until Rare Disease Day to share your photo and please tag RARE Youth Revolution when you do. We look forward to seeing your photos!​​