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RAREYouth
Revolution

Empowering young adults and their families within rare disease communities

Hope is a tiny spark that can survive the darkest nights

Trapped inside his own body for many of his teenage years, Liam shares his personal story, which, despite the numerous battles he has faced at such a young age, is one of hope

Liam Virgo in wheelchair

Liam Virgo in wheelchair

"We can’t choose the cards we are dealt with in life, but we can choose how we react to them”

Charley Reuben discusses how she addressed these feelings, reframed her mindset and removed blame to focus on the joy in her life. Shaped by the experiences of living with a rare condition, she has advice for other young people navigating a rare journey

LGMD

LGMD

Letters to my Younger Self: Leah Morris

Leah Morris, who lives with MPS Type 6. shares her Letter to my Younger Self

Letters to my Younger Self: Leah Morris

Letters to my Younger Self: Leah Morris

Want to share your story with our readers?

Are you under 30 and live with a rare disease or condition? You could be one of our volunteer contributors and share original written or social media content with us. Send us an email to hello@rareyouthrevolution.com or click the button below to complete our form.

Meet Eddison

Meet Eddison

Meet Claire

Meet Claire

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