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RARE
Youth
Revolution
Empowering young adults and their families within rare disease communities
Collaborating with Dr Hen Says to crack medical gaslighting
RARE Youth Revolution announces new genetics and relationships project — ‘My life, my genetics’
My Experience at RAREfest22
News & events
This is Me—a poem for NF Awareness Month
More than I ever imagined
Hope is a tiny spark that can survive the darkest nights
our voices
Advocacy Corner: Lea Jabre
Necrotising enterocolitis (NEC) and its long-term complications: Lakevia Ward’s experiences
Undiagnosed Children's Day: a puzzling rare disease journey
Overcoming Barriers To Freedom
The importance of advocacy: Raising awareness for neurofibromatosis
Ten Things I Wish You Knew (from an Ambulatory Wheelchair User)
Communicating effectively with young people in healthcare
The importance of engaging young people in healthcare
RARE Youth Revolution announces new genetics and relationships project — ‘My life, my genetics’
Empowering the Tay-Sachs Community through Video
Zach's Law - A Step For Changing the Lives with Epilepsy
My year at RARE Youth Revolution
World Will Remember You Dad book review
Females with X-linked Diseases Aren’t “Just Carriers"
My rare disease podcast to my rare disease products!
Everylife Foundation launches young adult leadership academy
Growing pains...
Raise the RARE and Rise💛
Dreams for Kids DC
Rays of Sunshine
Born rare...
My life as an advocate
RARE Youth takeover for Rare Disease Day 2020
Juvenile systemic lupus erythemastosus
Advocacy
Why academia drives out young, chronically ill students
How Social Media Has helped me live with a rare condition
Empowering the Tay-Sachs Community through Video
Science & tech
Reviewing the Sociability App - Helping disabled people find accessible places
Seasonal Affective Disorder
A Merry Online Christmas
COLUMNISTS
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