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Collaborating with Dr Hen Says to crack medical gaslighting
RARE Youth Revolution announces new genetics and relationships project — ‘My life, my genetics’
My Experience at RAREfest22
Classic congenital adrenal insufficiency: treatments and EMS protocols must improve
Functional vs structural disease and the stigma associated with the functional label
National Disability Employment Awareness Month: the challenges in disability employment
Overcoming Barriers To Freedom
The importance of advocacy: Raising awareness for neurofibromatosis
Ten Things I Wish You Knew (from an Ambulatory Wheelchair User)
Communicating effectively with young people in healthcare
The importance of engaging young people in healthcare
Empowering the Tay-Sachs Community through Video
Zach's Law - A Step For Changing the Lives with Epilepsy
My year at RARE Youth Revolution
World Will Remember You Dad book review
Females with X-linked Diseases Aren’t “Just Carriers"
My rare disease podcast to my rare disease products!
Everylife Foundation launches young adult leadership academy
Growing pains...
Raise the RARE and Rise💛
Why academia drives out young, chronically ill students
How Social Media Has helped me live with a rare condition
Reviewing the Sociability App - Helping disabled people find accessible places
Seasonal Affective Disorder
A Merry Online Christmas