Medical gaslighting—do I have to be in a life-threatening situation to be taken seriously?

The journey to embracing your mobility aids

One in a Million

RARE Youth Revolution announces new genetics and relationships project — ‘My life, my genetics’

Empowering the Tay-Sachs Community through Video

Zach's Law - A Step For Changing the Lives with Epilepsy

My year at RARE Youth Revolution

World Will Remember You Dad book review

Females with X-linked Diseases Aren’t “Just Carriers"

My rare disease podcast to my rare disease products!

Everylife Foundation launches young adult leadership academy

Growing pains...

Raise the RARE and Rise💛

Dreams for Kids DC

Rays of Sunshine

Born rare...

My life as an advocate

RARE Youth takeover for Rare Disease Day 2020

Juvenile systemic lupus erythemastosus