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RAREYouth
Revolution

Empowering young adults and their families within rare disease communities

Collaborating with Dr Hen Says to crack medical gaslighting

Collaborating with Dr Hen Says to crack medical gaslighting

Collaborating with Dr Hen Says to crack medical gaslighting

RARE Youth Revolution announces new genetics and relationships project — ‘My life, my genetics’

RARE Youth Revolution announces new genetics and relationships project — ‘My life, my genetics’

RARE Youth Revolution announces new genetics and relationships project — ‘My life, my genetics’

My Experience at RAREfest22

My Experience at RAREfest22

My Experience at RAREfest22

Pujitha Kolla

Pujitha Kolla

Neurofibromatosis type 2 was NEVER on my bingo card

Grief and rare disease: losing my mum and my ‘life glue’

Grief and rare disease: losing my mum and my ‘life glue’

Grief and rare disease: losing my mum and my ‘life glue’

The road to recovery: Eden's journey through Long COVID into youth social action

The road to recovery: Eden's journey through Long COVID into youth social action

The road to recovery: Eden's journey through Long COVID into youth social action

Advocacy Corner: Lea Jabre

Advocacy Corner: Lea Jabre

Advocacy Corner: Lea Jabre

Necrotising enterocolitis (NEC) and its long-term complications: Lakevia Ward’s experiences

Necrotising enterocolitis (NEC) and its long-term complications: Lakevia Ward’s experiences

Necrotising enterocolitis (NEC) and its long-term complications: Lakevia Ward’s experiences

Undiagnosed Children's Day: a puzzling rare disease journey

Undiagnosed Children's Day: a puzzling rare disease journey

Undiagnosed Children's Day: a puzzling rare disease journey

Overcoming Barriers To Freedom

Overcoming Barriers To Freedom

Overcoming Barriers To Freedom

The importance of advocacy: Raising awareness for neurofibromatosis

The importance of advocacy: Raising awareness for neurofibromatosis

The importance of advocacy: Raising awareness for neurofibromatosis

Ten Things I Wish You Knew (from an Ambulatory Wheelchair User)

Ten Things I Wish You Knew (from an Ambulatory Wheelchair User)

Ten Things I Wish You Knew (from an Ambulatory Wheelchair User)

Communicating effectively with young people in healthcare

Communicating effectively with young people in healthcare

Communicating effectively with young people in healthcare

The importance of engaging young people in healthcare

The importance of engaging young people in healthcare

The importance of engaging young people in healthcare

RARE Youth Revolution announces new genetics and relationships project — ‘My life, my genetics’

RARE Youth Revolution announces new genetics and relationships project — ‘My life, my genetics’

RARE Youth Revolution announces new genetics and relationships project — ‘My life, my genetics’

Empowering the Tay-Sachs Community through Video

Empowering the Tay-Sachs Community through Video

Empowering the Tay-Sachs Community through Video

Zach's Law - A Step For Changing the Lives with Epilepsy

Zach's Law - A Step For Changing the Lives with Epilepsy

Zach's Law - A Step For Changing the Lives with Epilepsy

My year at RARE Youth Revolution

My year at RARE Youth Revolution

My year at RARE Youth Revolution

World Will Remember You Dad book review

World Will Remember You Dad book review

World Will Remember You Dad book review

Females with X-linked Diseases Aren’t “Just Carriers"

Females with X-linked Diseases Aren’t “Just Carriers"

Females with X-linked Diseases Aren’t “Just Carriers"

My rare disease podcast to my rare disease products!

My rare disease podcast to my rare disease products!

My rare disease podcast to my rare disease products!

Everylife Foundation launches young adult leadership academy

Everylife Foundation launches young adult leadership academy

Everylife Foundation launches young adult leadership academy

Growing pains...

Growing pains...

Growing pains...

Raise the RARE and Rise💛

Raise the RARE and Rise💛

Raise the RARE and Rise💛

Dreams for Kids DC

Dreams for Kids DC

Dreams for Kids DC

Rays of Sunshine

Rays of Sunshine

Rays of Sunshine

Born rare...

Born rare...

Born rare...

My life as an advocate

My life as an advocate

My life as an advocate

RARE Youth takeover for Rare Disease Day 2020

RARE Youth takeover for Rare Disease Day 2020

RARE Youth takeover for Rare Disease Day 2020

Juvenile systemic lupus erythemastosus

Juvenile systemic lupus erythemastosus

Juvenile systemic lupus erythemastosus

Why academia drives out young, chronically ill students

Why academia drives out young, chronically ill students

Why academia drives out young, chronically ill students

How Social Media Has helped me live with a rare condition

How Social Media Has helped me live with a rare condition

How Social Media Has helped me live with a rare condition

Empowering the Tay-Sachs Community through Video

Empowering the Tay-Sachs Community through Video

Empowering the Tay-Sachs Community through Video

Reviewing the Sociability App - Helping disabled people find accessible places

Reviewing the Sociability App - Helping disabled people find accessible places

Reviewing the Sociability App - Helping disabled people find accessible places

Seasonal Affective Disorder

Seasonal Affective Disorder

Seasonal Affective Disorder

A Merry Online Christmas

A Merry Online Christmas

A Merry Online Christmas

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