Overcoming Barriers To Freedom

My reality as someone living with primary ciliary dyskinesia

The importance of advocacy: Raising awareness for neurofibromatosis

Overcoming Barriers To Freedom

The importance of advocacy: Raising awareness for neurofibromatosis

Ten Things I Wish You Knew (from an Ambulatory Wheelchair User)

Communicating effectively with young people in healthcare

The importance of engaging young people in healthcare

RARE Youth Revolution announces new genetics and relationships project — ‘My life, my genetics’

Empowering the Tay-Sachs Community through Video

Zach's Law - A Step For Changing the Lives with Epilepsy

My year at RARE Youth Revolution

World Will Remember You Dad book review

Females with X-linked Diseases Aren’t “Just Carriers"

My rare disease podcast to my rare disease products!

Everylife Foundation launches young adult leadership academy

Growing pains...

Raise the RARE and Rise💛

Dreams for Kids DC

Rays of Sunshine

Born rare...

My life as an advocate

RARE Youth takeover for Rare Disease Day 2020

Juvenile systemic lupus erythemastosus