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Advocacy Corner: Lea Jabre
We asked stiff person syndrome advocate, Lea Jabre, to share her tips about life with a rare disease.
RAREYouth
Jul 23, 2024
Necrotising enterocolitis (NEC) and its long-term complications: Lakevia Ward’s experiences
Lakevia Ward shares her “bittersweet life” living with the long-term effects of necrotising enterocolitis (NEC)
RAREYouth
May 16, 2024
Undiagnosed Children's Day: a puzzling rare disease journey
For Undiagnosed Day, Marlene Soto, founder of Helping SWANS, tells us her experience of endlessly searching for a diagnosis for her son, AJ.
RAREYouth
Apr 25, 2024
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