We asked stiff person syndrome advocate, Lea Jabre, to share her tips about life with a rare disease.

Lakevia Ward shares her “bittersweet life” living with the long-term effects of necrotising enterocolitis (NEC)

For Undiagnosed Day, Marlene Soto, founder of Helping SWANS, tells us her experience of endlessly searching for a diagnosis for her son, AJ.