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Love letter to "Our SWAN Kid" - Marlene
This "Love Letters" entry comes from Marlene, whose son, AJ, is currently undiagnosed, also known as SWAN (Syndromes Without A Name).
RAREYouth
Oct 23, 2023
Love Letter to my Father - Shyamala
Welcome to our series "Love Letters", where RARE Youth Revolution ask our community with a loved one living with a rare disease to write...
RAREYouth
Aug 22, 2022
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