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    RAREYouth

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    News & Opinion Youth

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    Powering up the voices of the youth rare disease community

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    Gift Guide
    RAREYouth
    • Dec 23, 2021
    • 2 min

    Gift Guide

    13 views0 comments
    Lexi's Legends
    RAREYouth
    • Dec 16, 2021
    • 2 min

    Lexi's Legends

    20 views0 comments
    A festive message from Eddison Miller!
    RAREYouth
    • Dec 15, 2021
    • 2 min

    A festive message from Eddison Miller!

    39 views0 comments
    Eddison Explores: Back 2 School
    RAREYouth
    • Sep 2, 2021
    • 2 min

    Eddison Explores: Back 2 School

    71 views0 comments
    RARE Talks Xeroderma Pigmentosum
    RAREYouth
    • Jul 30, 2021
    • 1 min

    RARE Talks Xeroderma Pigmentosum

    145 views0 comments
    Eddison Explores - Cycling in the Sun!
    RAREYouth
    • Jul 10, 2021
    • 2 min

    Eddison Explores - Cycling in the Sun!

    63 views0 comments
    Mental Health awareness month: Helpful anxiety tips
    RAREYouth
    • May 31, 2021
    • 2 min

    Mental Health awareness month: Helpful anxiety tips

    35 views0 comments
    TREND community and RYR- mental health survey results
    RAREYouth
    • May 19, 2021
    • 3 min

    TREND community and RYR- mental health survey results

    44 views0 comments
    Capturing RARE Youth Voices Survey Results
    RAREYouth
    • Apr 15, 2021
    • 3 min

    Capturing RARE Youth Voices Survey Results

    71 views0 comments
    RARE Talks Ehlers-Danlos syndrome.
    RAREYouth
    • Mar 25, 2021
    • 1 min

    RARE Talks Ehlers-Danlos syndrome.

    101 views0 comments
    The good days and the bad days
    RAREYouth
    • Aug 6, 2020
    • 2 min

    The good days and the bad days

    485 views0 comments
    Somebody rare
    RAREYouth
    • Jul 21, 2020
    • 1 min

    Somebody rare

    304 views0 comments
    Owain's adventures living with Noonan syndrome
    RAREYouth
    • Mar 1, 2020
    • 2 min

    Owain's adventures living with Noonan syndrome

    60 views0 comments

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