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News & Opinion Youth

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Powering up the voices of the youth rare disease community

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Gift Guide

Dec 23, 2021
2 min

Gift Guide

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Lexi's Legends

Dec 16, 2021
2 min

Lexi's Legends

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A festive message from Eddison Miller!

Dec 15, 2021
2 min

A festive message from Eddison Miller!

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Eddison Explores: Back 2 School

Sep 2, 2021
2 min

Eddison Explores: Back 2 School

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RARE Talks Xeroderma Pigmentosum

Jul 30, 2021
1 min

RARE Talks Xeroderma Pigmentosum

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Eddison Explores - Cycling in the Sun!

Jul 10, 2021
2 min

Eddison Explores - Cycling in the Sun!

63 views0 comments

Mental Health awareness month: Helpful anxiety tips

May 31, 2021
2 min

Mental Health awareness month: Helpful anxiety tips

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TREND community and RYR- mental health survey results

May 19, 2021
3 min

TREND community and RYR- mental health survey results

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Capturing RARE Youth Voices Survey Results

Apr 15, 2021
3 min

Capturing RARE Youth Voices Survey Results

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RARE Talks Ehlers-Danlos syndrome.

Mar 25, 2021
1 min

RARE Talks Ehlers-Danlos syndrome.

101 views0 comments

The good days and the bad days

Aug 6, 2020
2 min

The good days and the bad days

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Somebody rare

Jul 21, 2020
1 min

Somebody rare

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Owain's adventures living with Noonan syndrome

Mar 1, 2020
2 min

Owain's adventures living with Noonan syndrome

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