top of page
Home
About us
Blog Posts
Contact Us
Five minutes with...
My Life, My Genetics
Resources
RARE Recruitment
More
Use tab to navigate through the menu items.
RARE
Youth
Revolution
Empowering young adults and their families within rare disease communities
All Posts
News and Events
Charity and Advocacy
Women in RARE: Next Gen
Letters to my Younger Self
Science and Tech
Our Voices
Letters of Love
Coordinator Corner
Five Minutes with...
The World of Work
Columnists
Internships
News and Events (Kids)
Charity (Kids)
Our Voices (Kids)
Science and Tech (Kids)
Columnists (Kids)
Youth Spotlight
Search
Everylife Foundation launches young adult leadership academy
The Rare Disease Legislative Advocates (RDLA), a program of the EveryLife Foundation for Rare Diseases, has launched a new training...
RAREYouth
Jan 15, 2021
Growing pains...
Robin Powers, has been advocating for herself since a young age and is using her personal of HEDS to reimagine the future of rare medicine
RAREYouth
Oct 23, 2020
Raise the RARE and Rise💛
Shyamala's life was turned upside-down when her father was diagnosed with granulomatosis with polyangiitis
RAREYouth
Oct 20, 2020
Back to Top
bottom of page
