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RARE Talks Ehlers-Danlos syndrome.
The first video in our #RAREtalks Series features an interview with Katie and Esther, two members of our RARE team, both of whom have...
RAREYouth
Mar 25, 2021
The good days and the bad days
11 year old Esther had a "long and rough road" to diagnosis and is now learning to take the good days with the bad days of living with EDS
RAREYouth
Aug 6, 2020
Somebody rare
Nine year old Lacey, turned a school poetry assignment into a beautiful dedication to her sister Mila-Belle
RAREYouth
Jul 21, 2020
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