In a raw and honest account, Zintle Sidzamba shares the reality of dating while living with SMA. Ghosting, fear and other people’s perceptions can all take a toll, but Zintle has a powerful message for others who have experienced the same

Orestis and his friends share his experiences with spinal muscular atrophy and the support he recieves from his friends

Zintle shares how the love and support of her family and friends has helped her to navigate life with a rare disease, and how important it has been for her to find ‘community’