top of page
Home
About us
Blog Posts
Contact Us
Five minutes with...
My Life, My Genetics
Resources
RARE Recruitment
More
Use tab to navigate through the menu items.
RARE
Youth
Revolution
Empowering young adults and their families within rare disease communities
All Posts
News and Events
Charity and Advocacy
Women in RARE: Next Gen
Letters to my Younger Self
Science and Tech
Our Voices
Letters of Love
Coordinator Corner
Five Minutes with...
The World of Work
Columnists
Internships
News and Events (Kids)
Charity (Kids)
Our Voices (Kids)
Science and Tech (Kids)
Columnists (Kids)
Youth Spotlight
Search
My experience with spinal muscular atrophy: Orestes and friends
Orestis and his friends share his experiences with spinal muscular atrophy and the support he recieves from his friends
RAREYouth
Feb 18
Embracing my journey with spinal muscular atrophy: Zintle's Story
Zintle shares how the love and support of her family and friends has helped her to navigate life with a rare disease, and how important it has been for her to find ‘community’
RAREYouth
Feb 16
Back to Top
bottom of page
