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From invisible to visible
After years of having her symptoms dismissed, Nicole Calvani, has a diagnosis of systemic mastocytosis, and is creating her new normal
RAREYouth
Jun 5, 2020
Sisterly devotion
Megan Bagnall was 16 years old when her sister Libby was diagnosed with a ventricular septal defect which needed urgent life-saving surgery.
RAREYouth
Jun 5, 2020
Covid-19—let's face it together
If you are a child with a rare disease our friends at SAME BUT DIFFERENT would like to send you a free face mask
RAREYouth
Jun 5, 2020
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