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RARE Talks Xeroderma Pigmentosum

In the second edition of our #RARETalks series, Katie Callaghan and Esther Hula, two members of our RARE Youth team, speak to Eddison Miller and Richard Barlow about living and growing up with Xeroderma Pigmentosum.

You can find the video below!

Be sure to keep an eye out for more from the #RAREtalks series by subscribing to the RARE youth revolution YouTube channel HERE

To get involved with with our #RAREtalks series, you can email our youth coordinator James Brooks at


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