"World Will Remember You Dad: Rise The Rare And Rise" was written by Dr. Shyamala Peesapati, a young dentist based in India, as a...

When I was three years old, my dad was diagnosed with a rare, X-linked disease called Adrenoleukodystrophy (ALD). ALD is a neurological...

We got to catch up with the wonderful rare disease advocate and youth team ambassador Katy Baker as she makes waves in the world of rare...