I joined RARE Revolution in March 2021 in the role of RARE Youth Coordinator, as a 12-month internship. A friend from Niemann-Pick UK had...

For our 12 days of RAREmas, we have been suggesting gifts for members of the rare disease community. However, if maybe you might have...

Do a Good Deed and Become One of Lexi’s Legends this Holiday Season! On December 16, Alexandra (Lexi) Townsin should be celebrating her...