top of page
Home
About us
Blog Posts
Contact Us
Five minutes with...
My Life, My Genetics
Resources
RARE Recruitment
More
Use tab to navigate through the menu items.
RARE
Youth
Revolution
Empowering young adults and their families within rare disease communities
All Posts
News and Events
Charity and Advocacy
Women in RARE: Next Gen
Letters to my Younger Self
Science and Tech
Our Voices
Letters of Love
Coordinator Corner
Five Minutes with...
The World of Work
Columnists
Internships
News and Events (Kids)
Charity (Kids)
Our Voices (Kids)
Science and Tech (Kids)
Columnists (Kids)
Youth Spotlight
Search
Letters to my Younger Self: Leah Morris
Leah Morris, who lives with MPS Type 6. shares her Letter to my Younger Self
RAREYouth
Jan 7
Finding my sense of belonging as a Radioulnar Synostosis advocate
Here, Isabella talks about her journey to becoming an advocate and expert for her condition, Radioulnar Synostosis.
RAREYouth
Sep 17, 2025
The struggle to find the words: Katie’s life with scoliosis
Katie shares her experiences living with scoliosis.
RAREYouth
Sep 3, 2025
Back to Top
bottom of page
